And yes don’t worry there is a life after diagnosis…. it’s just a little more complicated than before! but we fight it disney style : with positivity and sparkles all the way!So for the next couple of weeks life continued. I went to school and all was ok although after mum told the school I was banned from using the PE equipment as I could fall off!. My mum, had to learn how to use rectal diazepam which would get me out of a seizure if it didn’t happen on its own. I was too young to know or remember too much of the details. my life’s roller coaster was going at full speed and downwards.Life again continued on its merry way and apart from a few seizures I didn’t take much notice. As a young child you take things in your stride and grow to live with things. I wasn’t to know this wasn’t normal!. My mum on the other hand had to deal with the stigma of having a child with epilepsy. I now know after mum telling me that some of the parents told their children not to go near me because I had epilepsy!!! If any of those parents are reading this blog now…. shame on you but thank you because you are some of the reason I am the strong person i am today and am campaigning form more awareness.
At the age of 7 I moved. This was great fun as we actually moved on 24th November (my birthday) not only was it my birthday but it was snowing too! great fun for me but not so for the move.I was on a bit of a buzz as Topper and I (topper being out toy poodle) were staying with nan and grandad who had made me a cake and brought me the biggest polly pocket world i’d seen… I was loving it. I had to change schools and life was better. We were nearer to the rest of the family and I was going to the same school as my mum and cousins had been to. I met a new cousin while at school that i didn’t even know about so life was great. Then things changed Although i loved school, I was worried what the people, and my new friends would do if the seizures (fits as i called them) reared their ugly head. I would had to face another set of kids with the same kinda questions as the last. It didnt happen and I ended loving my new school, friends and life much better than my old school.
At the age of 7 I moved. This was great fun as we actually moved on 24th November (my birthday) not only was it my birthday but it was snowing too! great fun for me but not so for the move.I was on a bit of a buzz as Topper and I (topper being out toy poodle) were staying with nan and grandad who had made me a cake and brought me the biggest polly pocket world i’d seen… I was loving it. I had to change schools and life was better. We were nearer to the rest of the family and I was going to the same school as my mum and cousins had been to. I met a new cousin while at school that i didn’t even know about so life was great. Then things changed Although i loved school, I was worried what the people, and my new friends would do if the seizures (fits as i called them) reared their ugly head. I would had to face another set of kids with the same kinda questions as the last. It didnt happen and I ended loving my new school, friends and life much better than my old school.
