The morning of Jades Prom arrived. We had fat club in the morning (well I was visiting with Linda and Jade – before I get any of you curse me for trying to loose weight – IM NOT)
I woke up that morning knowing the day was going to be a struggle. I took my extra meds and kept my fingers crossed. I dont know how many seizures I had before we went that morning but I was close to a big one before we left I know. Thankfully It didnt happen.
We arrived at fat club and i recognised alot of faces from facebook and people Id spoken to via Linda. It was Lovely and really friendly.
There was a display going on and I took a look.
|2lbs of fat !
|jelly and cream (or a pint?)
One of the ladys whom I talk to on facebook Pat gave me some harribo… Linda and I were going to try vodka harribo at some point but these ones were to eat too. I had some hoping the sugar would help.
everyone was lovely.
During the meeting I started to struggle – I had to result to oxygen but it was running out. We got home and I felt my head start to feel really bad. I took pills, my oxygen and headed to the sofa for a rest.
Jade was due to have her hair done at 2pm. I wanted to document her prom for her… I had 1 hour to rest and get rid of this headache. Well I did rest but the headache didnt go.
The next few hours were preperation for jades prom. I took so many photos just of her hair being done..
I then went and rested and I really dont know for how long…. when the pain and strange feelings get to this point time passes that is all. I think I slept a little but I dont know.
Jade came down… I was awake and she looked stunning. I grabbed all the energy I could and my cameras and started snapping. We went outside and took some beautiful pictures and then I was honoured to travel to the prom with her… I took more pictures too. I was struggling the whole way but I love taking photos and it was Jades big day and she was so pretty.
When we got home however I dropped the camera and tried to edit some pics. In the end I had to resort to bed but I never got there. I went into status epilepticus and dont remember much I remember waking uo between a couple of seizures and Linda holding my hand, she will never know how much that helped. It was weird cos normally I can hear alot more than i could this time… everything was too distant and too scrambled. I struggled as much as I could to get up and stop but the seizures kept coming. I was taken by ambulance to Grantham hospital and I woke up again in resus at Grantham General Hospital. I couldnt undersand the dr, and what I could understand he wasnt listening…. my case is quite complex and they never seemed to understand. There was one really nice nurse who helped. I had a few tests and they gave me some medication and i was told to sleep…. yeah right ok so i slept, and they would wake me up for blood pressure,.. so id sleep again and the bin would bang down so loud i ended up having another seizure. In the end once id recovered from that seizure I self discharged myself. we called linda and she came and got us. (THANK YOU SO MUCH).
|in Grantham hospital
Prom was great. I had a long dress, a shawl and 2 men one on each arm a stretched limo and friends … i was a lucky girl. The night was great and i danced for an hour until the atmosphere changed…. I started to feel dizzy and hot and I went and stood outside the hall by the office door…. The disco was too much and i had nearly been captured by the beast again. My prom night ruined for me. I dozed on the big comfy chairs for an hour in my ball gown determined not to go home or to worry mum by calling her out. I woke and went back to the party. When the prom finished a group of us were due to go to an after party…. We climbed over the school gates as they were closed at the end of the school we wanted to leave and i struggled back to a friends house. Here we stayed up for a while (everyone else drinking, me not as i knew it wouldn’t end well) and had a laugh. I still felt i had a good eve. I went home at 1 am and didn’t wake up till11 the next morning.
6th form was difficult. My work was suffering as i was still having problems in class due to the absence seizures… if i concentrated at the board for too long i would have a grand mall as the flickering light was send me into oblivion!
I ended 6th form with my languages (english, french and the spanish id been doing at night school) and my sciences. I dropped history as i just couldn’t fill my brain with all the dates anymore. sad but resigned to the fact i would go back to night school and do it there. The second year i went to my first class. As i walked in the new drama teacher who was also head of year pulled me over. She said “now you don’t have any seizures in my class, I don’t have time for it” I was astonished. what was she on about… how ? what? i was stunned. I took a deep breath and said in no certain terms “if i could turn a switch mrs James, don’t you think i would choose not to have these at all?, She looked. I turned and walked out… i didn’t look back and never went back to school again. I felt discusted and betrayed but it may have been the best thing of my life to happen.
As soon as i left i started to panic. Tears streamed down my face as i walked home ( i wasn’t supoeesto be out on my own but i needed to breathe and i knew mum was at work) it was a long way and took 3 hours but by th time i got home mum was there and i had cleared my mind. I told her what happened and she freaked. She wanted to go to the school immediately but i stopped her and said i would work it out for myself.
That i did.
That eve i searched the web and ploughed the job sites. Id filled in so many forms i couldn’t remember what for.
but i felt relaxed that night as i went to bed. knowing i had a new life to start seemed quite calming. Despite not having a clue where that new life would take me, or when it would start.
The next morning i woke to the phone ringing. i reached out to the phone and a lady spoke “is that Joanne *******”
oh no i thought its the school with more issues! yes i said… reservedly. She continued to speak but i couldn’t tell you now what she said. at the end of the call she said she would call me back. I put the phone down and stood back in amazement. mum came in to see who it was…. Ive just got a job i said.
i sat down with mum and told her about the phone call……. i had just been enrolled onto a NHS apprenticeship in Physiotherapy. I would go to college 2 days a week while working at the local hospital. WOW i was happy.
I didn’t know much about physiotherapy so i googled it and found the basics… looks good i though plus i will probably get fit at the same time!
my first day was scary. i went to canterbury college and was enrolled. i filled out forms showed certificates and yes got questioned about my epilepsy which at the moment was behaving itself a little better… i’d not had a seizure in a month. i had a occupational health assessment and it was cleared as long as i didn’t work nights. this was fine as nights were not required at a cottage hospital.
I was into the job a whole year and id only had seizures while asleep. the medication was great. I applied for my driving licence and when it came through the post it was like my life had changed again. Freedom was on the horizon.