July 2013 - Page 2 of 2 - The Epilepsy Rollercoaster

The morning of Jades Prom arrived. We had fat club in the morning (well I was visiting with Linda and Jade – before I get any of you curse me for trying to loose weight – IM NOT)
I woke up that morning knowing the day was going to be a struggle. I took my extra meds and kept my fingers crossed. I dont know how many seizures I had before we went that morning but I was close to a big one before we left I know. Thankfully It didnt happen.
We arrived at fat club and i recognised alot of faces from facebook and people Id spoken to via Linda. It was Lovely and really friendly.
There was a display going on and I took a look.

2lbs of fat !

jelly and cream (or a pint?)

One of the ladys whom I talk to on facebook Pat gave me some harribo… Linda and I were going to try vodka harribo at some point but these ones were to eat too. I had some hoping the sugar would help.

everyone was lovely.

During the meeting I started to struggle – I had to result to oxygen but it was running out. We got home and I felt my head start to feel really bad. I took pills, my oxygen and headed to the sofa for a rest.

Jade was due to have her hair done at 2pm. I wanted to document her prom for her… I had 1 hour to rest and get rid of this headache. Well I did rest but the headache didnt go.

The next few hours were preperation for jades prom. I took so many photos just of her hair being done..

I then went and rested and I really dont know for how long…. when the pain and strange feelings get to this point time passes that is all. I think I slept a little but I dont know.

Jade came down… I was awake and she looked stunning. I grabbed all the energy I could and my cameras and started snapping. We went outside and took some beautiful pictures and then I was honoured to travel to the prom with her… I took more pictures too. I was struggling the whole way but I love taking photos and it was Jades big day and she was so pretty.
When we got home however I dropped the camera and tried to edit some pics. In the end I had to resort to bed but I never got there. I went into status epilepticus and dont remember much I remember waking uo between a couple of seizures and Linda holding my hand, she will never know how much that helped. It was weird cos normally I can hear alot more than i could this time… everything was too distant and too scrambled. I struggled as much as I could to get up and stop but the seizures kept coming. I was taken by ambulance to Grantham hospital and I woke up again in resus at Grantham General Hospital. I couldnt undersand the dr, and what I could understand he wasnt listening…. my case is quite complex and they never seemed to understand. There was one really nice nurse who helped. I had a few tests and they gave me some medication and i was told to sleep…. yeah right ok so i slept, and they would wake me up for blood pressure,.. so id sleep again and the bin would bang down so loud i ended up having another seizure. In the end once id recovered from that seizure I self discharged myself. we called linda and she came and got us. (THANK YOU SO MUCH).

in Grantham hospital

What girl does not want to go to cadbury world, the place where chocolate is made! and in my case dreams !

Ive always wanted to see the world of chocolate, to be in the biggest chocolate shop in the UK and to smell chocolate being made. It was a 2 hour trip to Birmingham – I really didnt realise it was so far. When My bestie said about going I never thought it would be so far. We arrived after the journey and entered Cadbury world.

there is so so much to say about cadbury world but if i did then it would ruin the surprise for you going yourself. There are alot of talks, lots of lessons about chocolate and a chocolate bean ride,

We were bombarded with chocolate bars at the beginning and then little pots of heaven… i mean to say little pots of melted chocolate around the course of the tour.

Then you get to write your name in chocolate and watch chocolate being made the new way and the old fashioned way. I could never work in a chocolate factory it would be far too tempting.

There were lots of shapes made from chocolate,… i even found a chocolate clarinet and saxophone !

Sadly these were not for sale.

the day was fab, very tiring and i was struggling that day but totally loved the experience.