At the hospital surprise hit me…. It was dr teri ! ! !!
does nothing change in these places i thought! i was happy to see a familiar face though as i felt silly, scared and like my world had come crashing down, and i was back to stage 1.
Dr terri looked at the report the school nurse had put in and listened to what mum said and asked about my feelings…. He decided that it would be best to send me to a specialist (more so that him) the carbamazepine were not working very well and it had all come on quite quick. On the way out i had to go for another EEG, ECG, MRI scan and blood tests. God how i hated blood tests.
i was referred to Dr Mick at a specialist centre. This centre was a weird place, like a old victorian house with a long thin stair case leading unto a landing and a couple of rooms then another staircase leading up to where we needed to go. i booked in and sat down with mum in the waiting area. The centre was used for ill and disadvantage kids on certain days and the room was filled with toys…. i remember thinking how stupid it is to have a building like this for disabled children when they had to climb 2 lots of stairs and squeeze down corridors…. not a place easy for a wheelchair and no lift! the place has been re-located now but at the time it must have been a logistical nightmare for staff and parents!
Dr Mike was lovely. He was a very large man who looked quite scary but his manor was impeccable. he went through the results of the EEG, and MRI and blood work with mum and I.
The blood tests showed that the level of drug in my blood was not very high so thats probably why it wasn’t having much effect. The MRI showed some darkening over the left side of my brain which added up with the EEG results which showed most spikes over the same area and then a few in the rest of the brain. He concluded i had absence seizures (id been daydreaming a lot but the nurse had reported a couple of spells of this (that i was totally unaware of) in the day after the seizure at school. and also complex partial of the left temporal lobe with secondary generalisation.
This meant nothing to us at that point but i got on the computer and with a few leaflets that dr mike gave us i done my research with mum. We were both pretty horrified as i two types of seizures but tried to stay positive as we’d got settled on medication before so surly we could do it again.