Confidence again?

Well monday. I was sitting at home after sleeping on and off for the majority of the day. It was band practice night. I love band do not get me wrong but As always after a bad spell I was super nervous about being anywhere that there are alot of people and Im in this sort of space. hey ho. I went. All was fine but I felt exhausted and drained and it was so so cold but I enjoyed it all the same. 

The rest of the week has been a bit crazy.  I had an appointment at the drs re my neck being so so painful. So I went and I came home with literally a bag full of medication. It was a new dr who I handnt seen before…. Normally this is bad news as they are scared of changing anything without my consultants approval. This one was different though and very thorough. He went through everything – epilepsy – cluster headaches – my recent pain in my joints and especially neck – questioned me about my pcos which I don’t really take much notice about. Anyway I was sent for a ECG re going on theist resort pills for cluster headaches. I have had this ECG before but it came up with a problem and I wasn’t allowed to go on the pills. This time he thought it may be different so I booked in for the next day. ECG done and well yep there was a issue in amongst all this I’ve been trying to get my prescription for my emergency injections and after two weeks I still can’t get them. The chemist is now going to the manufacturer to see if they can get some. I prey they are here by my holiday. I can’t be without these things. It’s ok being about here cos I can go to the hospital but its not the sort of thing I want to do on holiday. 
Anyway here we are it’s Friday and I’m off to the drs again this time to talk over the new ECG and the probability of being able to take the new meds and to find out what the heck I going on with my heart. 
Life can be hard sometimes but I got to laugh and enjoy it when u can. I’m a bit excited today as I’ve treated myself to a camcorder! I’ve been using my phone a lot for film but its not very good so I’m hoping to be able to do some film and maybe add bits to the blog. Maybe do a vlog! Anyway I will have to work out how to use it first- may take a while! 
So apart from dr appointments and wires, injections and that this week has been pretty quiet. 
I have had only a couple of seizures a day and yeah that’s good for me!



So I’m mega excited about a few things  going on in the next few weeks. Firstly my friend is coming down this weekend again and we are going to sci fi by the sea! which if i can i will try video a bit if the camera arroves. then mext weekend the band I’m in is playing at a huge air show. The weekend after I am on holiday (my first in 5 years!) and the weekend I get back I’m going to a ball ! All I have to do is get through it all and have the confidence in my brain to enjoy it all. 

Easier said than done but I am so excited! 

Leave a Reply

Your email address will not be published. Required fields are marked *