Tag Archives: SUDEP

You can’t die


A week later we went back to the consultant.
I had written a list of questions I wanted to ask as i had been researching like i use to for my coursework to try and find answers to something that may help me.
The consultant was obviously in a bad mood that day he was slumped in his chair. one leg over the other with a book on his knee. He waved his pen and beckoned us to sit. I started to feel uneasy as i started to ask my questions, It felt like he wasn’t listening. When he started to answer my questions my fears were confirmed, He hadn’t listened to the question. I tried to ask him in a different way yet still nope. I started to get upset and he said “we can’t do anything for you but i wouldn’t worry you can’t die from epilepsy” At that i burst into tears, I excused myself and he stopped me, “why are you leaving” he said. I answered because I’ve been trying to ask you questions for 20 minutes and you haven’t listened or answered one of them. You have dismissed all my problems with saying i can’t die from epilepsy when last week you gave me a leaflet about S.U.D.E.P. (sudden unexpected death in epilepsy) With that i left the room.
I sat outside in the lobby waiting area and had a coffee. One of the receptionists came over and said “you had a appointment with dr boo didn’t you?” yes i said. “Do you wish to make a complaint?”
No i said. With that she gave me a tissue and left.
For a receptionist to say that I’m guessing this guy must have had a lot of complaints against him, since that day I never went back to him and have since found out that many people think his bedside manner a lot to be desired for.