June 28, 2013 - The Epilepsy Rollercoaster

So Friday 28th we were due to go to Lincolnshire to see one of my bestest friends. The packing was a well…. Ummm….. Challenge. Lots of pressies and lots of stuff which I felt I needed (I still think I need it) plus a lot of medical stuff (whole suitcase to be exact). A few play about bits including my old flute (don’t like being without a musical instruments).

Finally we were ready. We had to take Magick to cattery which although it was the best cattery around 5* and very lovely people I still had a lot of tears. He had all his home comforts there though and looked ok when I left. I try not to think of him too much as I know he will be fine.

The taxi came, Nigel was lovely. We had lots and lots of traffic on the way though

Eventually we got to Lincolnshire, OMG the scenery. Lots of fields and pretty lanes. Some we saw as on the way to Linda’s we got a little lost but finally after about 5 hours we arrived at Linda’s.

Cuppa and meet the dogs and chill out was for the rest of the day. It’s was lovely to see her again.

We went up to our room and the bed was lovely made and there were Disney cushions! So fab… And they were for me. What a surprise. I am a huge Disney fan!

There was even a finding Nemo one……

“Just keep swimming”

After a long days travel my head was quite bad, a little while on the oxygen and it eased a bit though. Bed time was very welcomed. So much fun ahead of us.

This morning is 22nd June. I had my consultant appointment at 10 so I couldn’t leave home to the gig any earlier. we got up and ready and went to my appointment. That was both good and bad. Good that after reviewing the EEG’s better they have better idea of the issues surrounding my temporal lobe areas. Bad news being that after this I now have to go back to London where the treatment is better than down here. I don’t know what this will entail yet but it’s a wait and see. I’ve normally been going to kings college but this time i have to go to the national hospital for neurology and neurosurgery. It’s a bit of a bummer but at least it’s another step forward.

After my appointment I ended up sitting in a 5 hour traffic jam on my way to the Kent airshow as I was supoesto be playing at a gig there. Eventually (after the 5+ hours) we turned round and came home because the band had already played and by this point I was not interested in walking round a field of planes.

By the time I got back to nan and grandads I got out the car and my legs went to jelly… I literally got out the car and crumbled into a heap. In the end I had to laugh.