New Years Resolutions


A New Year, a new start –   Yet people still hold grudges? 


We once again welcome a new year that brings with it a message of hope.  A dawning of a brand new chapter in our lives that shows us that it’s okay to let go of the past and start again. It’s like a yearly reset button that allows you to change whatever you like. It’s an opportunity to reinvent ourselves but only if you have the strength to keep moving forward.  It’s one thing to sit down and create a long list of New Year’s resolutions, and it’s another to have the will power or self-discipline to follow through with them.


What are you willing to do differently this year?  What are you willing to sacrifice so that you can finally live the life that you have always imagined? Will your change make other peoples lives better?  


A few people have said things to me over the last few days about things and people I know. Its got me thinking that this reset button called new year isn’t being used correctly. On the whole people are making pointless resolutions which they never keep. This year instead of sitting down and coming up with a massive list of resolutions, come up with one thing to do and then just do it.  You don’t need to prepare.  You don’t need to buy anything else to make it happen.  Just do one thing.


I can think of one that would stop the hurt and pain and stress of life for many people that I’ve been hearing about…… Stop rudeness to others, stop holding grudges however big or small. Get over whatever it is thats holding you back from being nice and civil to people around you. Its a desperate  waste of your life and your hurting others. 


When someone is In the situation I am you look at life very differently – every morning I wake up in my own home, every moment, conversation, feeling, picture, days out of hospital or with less pain, not being on oxygen is precious. I dont know what’s going to happen in the next minute, hour, day – every seizure could result in me not being here so in reality I don’t know what the future holds. I value every part of what I have. Every friend, every hug, every kind word, and more. Yes the pain gets me down yes the seizures get me down that can’t be helped  but when people get me down that’s when I get upset and cross because people can have more respect for others people can have manners, people can change their ways and start appreciating what they have – I wish those people who hold grudges, have issues with others and cause issues for others would take a look at their life and realise its not all theirs- it’s on lone. One day you won’t be here and its only memories that will be left. Do you want peoples memories of you to be bad – “that woman always had a grudge” – “that man never had a good word about anyone” ? whatever lives real meaning is, its  precious and too short to hold a grudge, cause hurt or halm to others or be a idiot.


Life is precious and shouldn’t be used to cause problems and issues for others. If everyone applied this rule to 2014 who knows the changes that could happen – life would certainly be less stressful, depressing and upsetting for many people. 
Make 2014 the year to change yourself and use your life for good and become a better person. If you can be nice, say something nice or have respect then just don’t say anything at all. Don’t make someone else’s life bad because you have a problem. 



As the ancient sage Lao-Tzu reminds us, “The journey of a thousand miles begins with a single step.”


Don’t waste any more time preparing — Just start walking and create the life you were meant to live!





This was published in the online paper thursday thought 
Click here to read it

A Mothers & daughter shares a Point of View

I asked my mum to tell me a bit about her point of view: this is what she told me…


Having a daughter with severe epilepsy has its challenges. Im a carer and a mum but a mum is a career anyway isn’t she? There are so many things that impact upon our daily life that no-one else realises unless they too are in the same situation. These are things which we have been advised by Dr’s, Nurses, Care givers, these are not because i’m an over protective mother. These have to be done as Jo’s risk of injury is so high. Things she can’t do unless I’m there watching. Not using sharp objets, cooking with hot food or even making her soaps unless I’m watching. Carrying hot drinks, having to have her hot drinks in a sealed cup with a straw! no locked doors in the house! having to be there when she has a bath or shower just in case !
When going up or down stairs – being in front to catch her.
Having to have guard rails on the bed so when she has a seizure at night she doesn’t fall and hit her head on the floor or cabinet.
When she’s crafting any scissors, needles, pins need to be put down if i go out the room for even a second. We have a buzzer system so that if I’m in another room Jo can alert me if she feels a seizure coming on…. or the buzzer activated when it hits the floor. It has about 80% success rate
When we are out we link arms so I can prevent injury to a certain degree if she falls outside on the pavement.


SUDEP (sudden unexpected death in epilepsy patients) is a factor and we know it. Jo has all the risk factors and so keeping her safe is my priority, she’s my daughter and I love her so much.
I live with the knowledge that every seizure may end in ITU (intensive care unit)… or worse.

The mental strain and physical strength needed is great. 



Emotions run high on many occasions in our house. Understanding between family members is not always easy and I have to be there for jo – who else has she got. 
I know very few people who can cope with the the physical and mental strain of Jo having a seizure. They say its ok and they can cope but when they see Jo at her worst many Freek out not knowing / not remembering what to do and stand mouth open and freeze.  – Including her father ! 

People don’t realise that every day Jo is in pain. to watch your daughter suffer day in day out is an emotional strain that no -one (unless they are going through it) understands. 

Life is a mixture of pain, seizures, emotion, depression, but also of the great courage and strength I see Jo going through what she does and I feel I have the easy bit sometimes. I keep strong for her but she is the strong one coping with the physical and mental pain day after day. In the end we work together we both need each other. I will never underestimate the strength that is inside that daughter of mine though.

S. Mumford 



ABOUT MUM 
My mum  is a very special Mother. She has raised a independent minded, confident, strong lady through more adversity that many of us can even begin to comprehend. Her unconditional love and support never waivers.  In addition to her strength and courage, she has had to face the horrible world of seizures, epilepsy and hospital visits.
She has sat by by my side day in and day out and watched me get poked, cut, poisoned and sedated with drugs and she can do nothing more than wipe the tears away, hold my hands, hug and pray that something will work.

Mum lives on little sleep and spend countless hours in small, cramped hospital rooms  and bedrooms sleeping on chairs with the stress of seeing me go through countless seizures and seeing the condition slowly wearing me down and appearing in desperate eyes . When I finally sleep, she is searching, asking, why us? preying to find help from any source, from any person or place that offers the tiniest shred of hope – finding out that private care is too expensive is a desperate blow.

There are other Mother’s like mine who go through the same strains and they have to also deal with the life around them going on without them being able to be present.

These Mothers… These  Epilepsy warriors deserve a very special recognition to know how incredible they are and hope that one day you get that news you need today to help you to continue strong on your journey for a cure ! ♥ ♥ ♥